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Tag: POTS

Instagram: July 17, 2019 at 02:18PM


via Instagram https://www.instagram.com/p/B0BxRFghfEF/

I am going to be interviewing Mike Bockoven, the author of the horror novels FantasicLand and Pack, for my podcast, tomorrow.
#fantasticland, people!

I need your questions for him. Hit me up! Comment here, or, if you want to be private, email me at carla@nulltheremightbecupcakes.com.

#pack #mikebockoven #interviews #horrorinterviews #horror #horrornovels #slashers #slashernovels #dystopia #dystopiannovels #werewolf #werewolves #werewolfnovels #werewolfhorror

Oh, yeah, and my new wheelchair ♿️ is in progress—I’m looking at you, Anthem HealthKeepers 👀 , and I am going to see Midsommar on the Same Day as the interview, so my heart can’t take the excitement. ❣️❣️❣️

#pandaplanner #viaplanner #cursiveismagic #horrorlit #horrorliterature #podcast #podcasting #amreading #bookstagram #booklife #readersofinstagram #theremightbecupcakes #midsommar #ladypodsquad #beyourownheroine

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Episode 30: A Zebra with No Spoons

I have Ehlers-Danlos Syndrome, fibromyalgia, and POTS.

Books quoted in this episode:

Rachel Held Evans: Keep the Church Weird: Searching for Sunday

Resources for Living with EDS/HSD

EDS Resource Guides

The Zebra Network: POTS

Standing Up To POTS: Resources

FibroCenter: Fibromyalgia Resources

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Mental illness lies to us about isolation

View this post on Instagram

Hi, my name is Carla, I’m 46, I’m a podcaster, I have 2 dogs…and I have chronic primary and secondary depression and anxiety. What I mean by this is that I have them as stand-alone diagnoses, then have them compounded as both symptoms of, and then also natural consequences of, my chronic illnesses of EDS, fibro, and POTS. Triple whammy. I also have some PTSD issues even now from the assault I described and unpacked in episode 34, “This Girl Just Had a Bad Date”. Depression and anxiety (and PTSD) are liars, and one of the most insidious lies is that you are alone in this pain, and that you are alone in this—inability to cope? Inability to bootstrap yourself? Inability to YOLO? So I made a list in my #commonplacebook, which goes with me everywhere, of successful, “happy” people who do or have struggled with mental illness, often multiple disorders, like me. A couple of them, like @ladygaga, are also chronically ill like I am. Now, next time depression or anxiety tries to tell me I am all alone or desperate, I have receipts. I hope this list helps someone else, too. Add me to the list, and add yourself to the list. As Rumi said, we’re all just walking one another home. I will put a picture of the full list on theremightbecupcakes.com. #depression #anxiety #mentalhealth #strength #bujo #bulletjournal #neveralone #horrorpodcast #truecrimepodcast #bookpodcast #literaturepodcast @braintrustfm #chronicillnesspodcast #chronicpainpodcast #spooniepodcast #spooniepodcaster #zebrapodcaster #zebrapodcast #braintrustnetwork #cursiveismagic #chronicpain #chronicillness #PTSD #beyourownheroine

A post shared by There Might Be Cupcakes (@theremightbecupcakes) on

full image of spread:

 

Quote I referred to in the Instagram description:

We are all just walking each other home.

Rumi

Recommended reading:

Stitches: A Handbook on Meaning, Hope and Repair by Anne Lamott

Prozac Diary by Lauren Slater

my Goodreads chronic illness bookshelf (to be read and read)

These books added to the podcast’s bookshelf on Goodreads | please feel free to add me as a friend on Goodreads

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Book Lists: Chronic Illness

Listopia on Goodreads:

my chronic illness Goodreads bookshelf

Bumped to the top of my to-be-read list from these two Listopia/Goodreads lists:

Do you have any recommendations or additions?

the podcast’s bookshelf

please feel free to add me as a friend on Goodreads

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Episode 26: Pilgrim at Little Piney Creek

Little Piney Creek
Little Piney Creek, Amherst County, Virginia
photo by Carla

Pilgrim at Tinker Creek by Annie Dillard: Kindle, Audible (narrated by Tavia Gilbert), paperback formats

Some books entertain you, some books distract you, and some books, if you are very, very lucky and find them, captivate you, and take your breath away from the very first page. You recognize them–and it almost feels as if they recognize you.

–Carla Hufstedler, episode 26, Pilgrim at Little Piney Creek

The Little Piney River is a 7.6-mile-long tributary of the Piney River in Amherst County in the U.S. state of Virginia. Via the Piney and Tye rivers, it is part of the James River watershed. (Wikipedia)

The Piney River is known around here as the “Big Piney”. Naturally. And notice we are so out in the country that the map just says “2” for “District 2”.

Walden (free in ebook format), by Henry David Thoreau — I once spent the afternoon at Walden Pond, and that place truly has an aura about it. I highly recommend putting it on your bucket list. In the spirit of nature writing, here’s the facts:

  • Kettle hole formation lake, formed by glaciers retreating 10,000 to 12,000 years ago
  • Depth: 108 feet (33 m)
  • Surface area: 2,657,157 sq feet (246,858 m²)
  • Shore length: 1.70 miles (2.74 km)

Also recommended in the spirit of this book

The Art of the Personal Essay: An Anthology from the Classical Era to the Present by Philip Lopate — the personal essay is a window into the private human condition. My best English teachers gave me scores of essays to read, from antiquity to modern American history, and they taught me much about what it is to be human, and to communicate that humanity with emotional power.

my essays shelf:
Carla's book recommendations, liked quotes, book clubs, book trivia, book lists (essays shelf)

It is winter proper; the cold weather, such as it is, has come to stay. I bloom indoors in the winter like a forced forsythia; I come in to come out. At night I read and write, and things I have never understood become clear; I reap the harvest of the rest of the year’s planting…The mountains’ bones poke through, all shoulder and knob and shin. All that summer conceals, winter reveals.
—Annie Dillard, Pilgrim at Tinker Creek

Little Piney River
Little Piney River, January 8, 2018, taken by Carla’s husband

It has always been a happy thought that the creek runs on all night now every minute, whether I wish it or know it or care, as a closed book on a shelf continues to whisper to itself its own inexhaustible tale.
—-Annie Dillard, Pilgrim at Tinker Creek

Little Piney River
Little Piney River, January 8, 2018, taken by Carla’s husband

Putting you in the mood to put pen to paper? Good!

And you’re going to need a paper companion for your initial forage into your environment. I suggest these guided ones, which I plan upon playing with myself, and may discuss my adventures with in a future episode: The Pocket Scavenger and How to Be an Explorer of the World, both by Keri Smith.

All books, of course, added to the podcast’s bookshelf on Goodreads. Please do feel free to add me as a friend there should you like.

Also mentioned in the episode

 

And we the people are so vulnerable. Our bodies are shot with mortality. Our legs are fear and our arms are time. These chill humors seep through our capillaries, weighting each cell with an icy dab of nonbeing, and that dab grows and swelss and sucks the cell dry. That is why physical courage is so important–it fills, as it were, the holes–and why it is so invigorating. The least brave act, chance taken and passage won, makes you feel loud as a child.

–Annie Dillard, Pilgrim at Tinker Creek

Perhaps it is all balanced as it should be, perhaps everything is happening exactly as it should. And, to reference the minor prophet Ferris Bueller, if you don’t open our eyes, life goes pretty fast, you’ll miss so very much. You can choose to see pain and horror or beauty and mystery in every process, every moment while still being bluntly honest about what’s happening.

–Carla Hufstedler, episode 26, Pilgrim at Little Piney Creek

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Episode 19 Teaser

Lovelies, I am sorry, but I am not going to be recording and publishing until tomorrow. I almost had a syncope (POTS fainting) episode today–luckily thwarted by last week’s ER doc’s medical advice, but even “almost” tears my body up.

But it’s going to be a good one, and since I am late, I will go ahead and spill:

It’s all about the eclipse, folklore about eclipses, and all tied into The Eclipse: The King Eclipse that empowered and psychically connected Jessie Burlingame (Gerald’s Game) and Dolores Clairborne.

To get you excited and tide you over, here’s the trailer for the amazing adaption of Dolores Claiborne, starring my friend in my head Kathy Bates and Jennifer Jason Leigh. Enjoy, and I will see you tomorrow.

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There Might Be Cupcakes Podcast

About Me, Myself, and Cupcakes

This is how long I have been working on this podcast.

Hi, I’m Carla. I’m a 47-year-old disabled writer. I live on a mountain in the Appalachian range, in the section known as the Blue Ridge in the state of Virginia, right on the edge of the George Washington National Forest. The latter makes the Missing 411 phenomenon extra spooky.

The official (read: written by me, I’m the only one here) podcast description for There Might Be Cupcakes gives a lot of information about my shenanigans here:

Carla is: a bookdrunkard, a 40-something with psychology and counseling degrees with post-grad work in grief/loss/trauma, sex crimes, and forensic anthropology.

a former freelance journalist and counselor, who is never bored.

a disabled introvert who sees connections everywhere–like John Nash, only less math-y.

a knitting fidget who loves horror movies with a skewed passion.

Like one of her heroes, Harriet the Spy, she wants to learn everything and write in all down (more likely than not in her bullet journal).

Join her (and sometimes her friends) in her strange library as she INFJs everything from unused angles.

It’s going to get weird in the best way. Let’s play.

I try to release episodes about once a week; I release right now as my health allows. I post a website entry for each episode, with more information, photographs, and suggested reading for that particular episode, and the available stream and downloadable MP3 for that episode. I will post additional posts from my Instagram, my Pinterest, and from anything topical that catches my interest and I think might interest you throughout each week.

All social media links:

Come hang out and say hi!

Most Recent Website Entries

WordPress All website entries

Disorders

My disabilities are Ehlers-Danlos, Hypermobility Type, POTS (Postural Orthostatic Tachycardia Syndrome), and fibromyalgia. Basically, the collagen in all twelve systems of my body is damaged, everything hurts all the time, and my blood pressure is not stable with a sudden change in posture (hard sneeze, laughing, standing up). My body is my frenemy.

How to subscribe

Finally…why cupcakes?

My friend, Greg Behrendt, has a comedy routine about how he would do unpleasant things for cake, and that anywhere you go, there might be cake. Well, cupcakes are all that and more: portable, equal, fancier…and so much more. The title represents sharing, hope, whimsy…and here’s Greg’s routine. Enjoy, and always remember there might be cupcakes.

Need to contact me?

Easy peasy: carla@nulltheremightbecupcakes.com

Ask me a question or suggest a book or topic.

Carla Hufstedler

1137 Little Piney Road

Roseland, VA 22967

Google Voice, to speak with me directly or to record a nice message to be played on the podcast: 434-214-0873

How to support me and the podcast

And thank you immensely, just for listening and visiting! I love my listeners, every one. Just your lending me your ears every week makes me so very happy, more than I can express

colophon: All content in podcast and on website not held in copyright by others copyright 2017-2019 Carla Pettigrew Hufstedler. All rights reserved.

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Episode 12: Driving, Dancing, and Pizza Hut

As I said, staring is caring with Arlo.

Book suggested for Audible: Yes Please by Amy Poehler

link for free copy of Yes Please and a 30-day trial of Audible, the wonderful audiobook subscription service and store with the best customer service of any bookstore

link to purchase Yes Please in audio format, narrated by the author, from Audible’s partner, Amazon

Books quoted in the entry

Yes Please by Amy Poehler (link to Kindle edition)

The Magicians series by Lev Grossman:

  1. The Magicians
  2. The Magician King
  3. The Magician’s Land

Carl Jung: Psychological Types

The Book of Esther

SARK: Glad No Matter What: Transforming Loss and Change Into Gift and Opportunity

All books added to the podcast’s Goodreads bookshelf.

Quick doodle for fun: my purse as assistive device. ♿️ My @mochigrams Better Together cross-shoulder bag stays balanced when I use my cane, lays flat when still strapped on when I am seated–out of my way & the way of medical professionals trying to do their job. And #whatsinmybag — anything I might need, from my medical log (which includes emergency info, all doctors + all my meds & appointments) to my Kindle, from dry mouth medicated lozenges to my guardian doll 😎, a treasured gift from @anotherjill. And yes, I do keep my extra pain meds in a Freud pillcase.

Throwback Thursday: “You’ll know it is time to turn the page when you hear the chime, like this.”
I love this photo for three reasons: the headphones–I look like I’m dropping beats, or working for NASA; I love any picture of my reading as a child; and, the already-visible EDS. You can see the Hypermobility in my oddly-turned ankle and in the unnatural way I am holding the headphones.
Also: is that a dress or the tiniest pantsuit ever?

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Upcoming Local True Crime: Help Save the Next Girl

This entry is part 1 of 4 in the series Against the Peace and Dignity of the Commonwealth

Along with my usual fare of literature, storytelling, and things that go boo, in the next few weeks and months I am going to be telling some local true crime stories, but in my own unique way, naturally. All will have happened (or be happening) either here, in Virginia, or my home state, North Carolina, and I am sticking to cases that I experienced as a citizen.

To launch this loose series, I give you the first national PSA of Help Save the Next Girl, the amazing educational and empowerment nonprofit founded by Gil Harrington, Morgan Harrington’s mother. I will post this video with its full information and links to Help Save the Next Girl on the website momentarily. Please check HSNG out: they have amazing safety tips that don’t just apply to Virginians or to Americans, and you can start up your own branch–even in your middle school! They have materials designed for different developmental levels, designed not to frighten but to empower.

I posted this information on the Facebook page, along with Help Save the Next Girl’s very first national PSA. Here I’ll post their 2017 PSA, along with their links. Be safe, and keep each other safe.

Help Save the Next Girl

About HSNG/about Morgan Harrington

Facebook page

Twitter

Instagram

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